SC News#14 - Leadership, #LongCOVID & Advocacy

Leadership, #LongCOVID & Advocacy

#SurvivorCorps Newsletter #14 / May 12, 2021

Survivor Corps’ Facebook Group is 166,000+ members strong
and committed to advocating on your behalf
to help develop a better understanding of COVID-19.

FORTUNE Magazine’s 2021 World’s 50 Greatest Leaders

Diana Berrent and Survivor Corps are proud and honored to be included on FORTUNE’s 2021 World’s 50 Greatest Leaders list, each of whom rose to respond to unexpected crises.

“Survivor Corps is writing the playbook for a new era of ‘Citizen Science’ Collaboration.”
#EpicenterOfHope

REGISTER: May 13 - 12PM ET

Virtual Congressional Briefing: Understanding the Immune Response to COVID-19

Join us for an in-depth discussion about the role of the adaptive immune response in combating COVID-19 and ongoing efforts to address the many consequences resulting from the virus.
FREE: Registration Link HERE

Co-hosts: Adaptive, Personalized Medicine Coalition with Sen. Tim Scott (R-SC), Sen. Kyrsten Sinema (D-AZ), Rep. Eric Swalwell
(D-CA) & Rep. Tom Emmer (R-MN).

Moderater: Cynthia Bens, Personalized Medicine Coalition with Expert panel:
• Lance Baldo, MD, Adaptive Biotechnologies
• Diana Berrent, JD, Survivor Corps
• Akiko Iwasaki, PhD, Yale School of Medicine
• James Kublin, MD, Fred Hutchinson Cancer Research Center
• Norman Sharpless, MD, National Cancer Institute

#LongCOVID Vaccine Study

Survivor Corps and Dr. Akiko Iwasaki MD (Yale School of Medicine) have joined forces to expand on recent Survivor Corps LTC Vaccine poll results showing 42% of respondents reported mild to full resolution of their long term symptoms after they received their vaccine.

Details and eligibility HERE:
Do the COVID Vaccines Improve the Symptoms of Long COVID? “Understanding the immune responses before and after vaccines holds the key to learning about long COVID disease and will provide an opportunity to design rational therapeutic approaches.” Dr. Iwasaki

*Study is recruiting participants who can come to New Haven, CT, 3 times in 3 months.

#MILLIONSMISSING GLOBAL

CAMPAIGN FOR ME HEALTH EQUALITY

May 12 is 6th Anniversary of #MillionsMissing,
a global movement powered by #MEAction to raise awareness and fight for recognition, education and research for people living with Myalgic Encephalomyelitis (ME) or ME/CFS. (Similar to Long COVID, ME/CFS is a post viral illness that millions are suffering from.)

Learn More & Take Action: millionsmissing.meaction.net
#MillionsMore #YouAreNotAlone

#Superheroes Unite & VidHug!

As we look back over the last 12 months, our #Survivor Corps family remains united, motivated, inspired and supportive.

To capture this spirit of Hope, Unity, Optimism and Positivity, we collected a few of your voices, share a few of your reflections and embrace you all in this warm & uplifting VidHug video!

WATCH: Survivor Corps: One Year, Together
#SurvivorCorpsStrong

Congressional Hearing: Apr. 28

WATCH: ‘The Long Haul’: Forging a Path through the lingering effects of COVID-19

Survivor Corps was invited to submit testimony to the Subcommittee on Health of the Committee on Energy & Commerce, co-chaired by Rep. Anna Eshoo and Rep. Frank Pallone, Jr. - examining the impact of Long COVID issues that require further research on individuals and population health, and identify how to prevent or treat this lingering pandemic consequence.

Committee Repository: Testimony HERE

Survivor Corps in The News!

Catch up on all our news, interviews and panels:
News12 LI: #LongCOVID Vaccine Study
USNews: CDC Guidance on Long COVID
ABCNews: Kids' COVID vaccine offers hope
NPR: Children 22% of New US COVID Cases
Politico: Moderna boosters effective vs variants
FDA: Pfizer authorized for Adolescents 12-15 yrs

Support Survivor Corps!

Please share our mission of COVID-19 Citizen Science Collaboration & #LongCOVID Advocacy Join our Facebook Group & Subscribe, Like, Follow: Instagram, Twitter, LinkedIn & YouTube.
Subscribe to SurvivorCorps.com

If you can support us financially, donate HERE.
#SurvivorCorpsStrong #EpicenterOfHope